And then, after PurpleStride, I am off to Washington, D.C. to make Ed's voice heard on the hill along with over 500 average citizens fighting to make a difference!
Back in November of 2010, when we were hopeful, before Ed's surgery was canceled, this was one of the things he desperately wanted to do - make it to D.C. for Advocacy Day - it wasn't to be....... But you bet your lilly-white behind - He Will Be Heard!
I know, I know - You all want me to shut up about it already....... NOT gonna happen! I will push & push & push until the Government and the NCI recognize the need to step up the fight against this horrific disease. In 53 days I will be in Washington, D.C. to encourage our countries leaders to pass the Pancreatic Cancer Research and Education Act... Here it is in a nutshell:
Things need to change - Things need to change NOW. Just this week there were two horrific stories in the news, one about a Kindergarten student in Southern Illinois facing Stage IV pancreatic cancer, and another, about a young girl - 17 yrs. old - losing her battle with Pancreatic Cancer... In one week these two stories broke... This disease needs major attention - this disease really does need AWARENESS. It IS the silent killer and we need the government and the medical community to step up and pay attention!
I have never been more proud to be a part of any organization (well, maybe when I had my first job at Memphis Kiddie Park when I was 15?!) .... The Pancreatic Cancer Action Network is going to make the difference - we will be the voice of change - Know It... Fight It... End It... Ya know what, I have a big ol' mouth and a big ol' attitude and I intend to use it.
Edward is missed so much that there are not enough words to describe it. But I refuse to let this gentle, giving, caring soul be forgotten... He was the most incredible man and I had the honor and privilege to know and love him deeply. Yesterday I had to right a small paragraph about his journey and battle with this disease - it brought back so many emotions - most especially upsetting was thinking about the night we received the news that his surgery was canceled - It made me cry a lot yesterday. But not today - today it's about PurpleStride and getting ready for Washington.
Edward James, you live in so many of our hearts and I promised you I'd fight - and I am... Now, if we could just get your damn team to double digits, I would feel like we accomplished your goal for PS2012! So, out there in cyber-space... consider joining our team or making a small donation... Ed's All Star Dream Team - www.purplestride.org/cleveland!
Peace & Good Health - MK
What a Handsome Man..... RIP Baby - Hope you are enjoying that Rock 'N Roll Heaven! Me xoxo