The 11th Hour on AM 1420 The Answer: PurpleStride Cleveland: Fighting for funding for P...

The 11th Hour on AM 1420 The Answer: PurpleStride Cleveland: Fighting for funding for P...: Ken McManus, MaryeKaye Mackulin, and Jim McIntyre Ken McManus is a living miracle.  He is living with pancreatic cancer, almost four y...

Pancreatic Cancer: Purple Stride 2013 « CBS Cleveland

Check out our awesome Media Support for the Cleveland PurpleStride 2013 coming up June 1st down at Voinovich Park!

Q104's Katherine Boyd interviewed myself and our awesome Survivor, Jessica!

http://cleveland.cbslocal.com/2013/05/10/pancreatic-cancer-purple-stride-2013/

And Leon Bibb interviewed the both of us for his Sunday morning Show, Kaleidoscope 

http://www.newsnet5.com/dpp/about_us/this-week-on-kaleidoscope---may-5-2013

Both were awesome opportunities to raise awareness in Cleveland and to let folks know we are out there every day batteling this disease! 

For Ed!  

COLT 2013 - A Big Success for the Cleveland Affiliate of the Pancreatic Cancer Action Network

Had the outstanding opportunity again in 2013 to attend "COLT" - Community Outreach Leadership Training for the Pancreatic Cancer Action Network.  The Cleveland Leadership team learned some great new ways to improve our Affiliate - and we played as well.  Here is a great little video of our 3 packed days in Manhattan Beach!  Along with some of my personal photo's from the trip. 

http://animoto.com/play/WoApIz6vp9aK1ZKChfTRLw

The Post Newspaper Publishes Us Again - We Appreciate The Support

When the local news organizations step up and help us with our mission to raise awareness, and in turn, help us reach our fundraising goals.........  all we can really say is THANK YOU!

I will tell you - getting published never gets old........

http://www.thepostnewspapers.com/strongsville/opinion/article_6cece611-cc63-5abe-af07-54ff6b1debd0.html#user-comment-area

PLEASE JOIN US ON JUNE 1 TO FIGHT THIS MONSTER DISEASE....  I promise you will have fun....  And, I have not given up hope that Captain America will pop in and say Hi...  I mean - he will be in the CLE causing us all kinds of traffic headaches, it's the least he could do - no?!

Come on Summer.....

PurpleStride 2013 - June 1 - Voinovich Park

ED'S ALL STAR DREAM TEAM

WANTS YOU.......  

 

PurpleStride Cleveland will be here in the blink of an eye, won't you join our team, create your own or just make a small donation to support the Pancreatic Cancer Action Network and help change the future of this disease!

 

Please join us for

 

PurpleStride Cleveland 2013

 at our new location in Voinovich Park on

Saturday, June 1, 2013!

 

Enjoy music, food, kids' activities, our ShopPurple store and awards, all while raising awareness of pancreatic cancer.

Choose... a timed race, run for fun, or enjoy the family-friendly walk. Form a team to raise funds, volunteer and honor a loved one.

Registration opens at 7am and opening ceremonies begin at 8:30am. The 5K run and 1 1/2 mile walk takes off at 9am and closing ceremonies will wrap it all up at 10am.

Online registration will close on May 28th so please register at

 

www.purplestride.org/cleveland

 

 

 

We Are Going to Rock the North Coast

CLE Style!

Ed's All Star Dream Team 2013

 

 

Lisa Nieme-Swayze Is a Purple Godess - She Keeps Patricks Fight Alive - I can Relate to That!

http://www.mercurynews.com/opinion/ci_22351071/lisa-niemi-swayze-pancreatic-cancer-finally-gets-federal

Lisa Nieme Swayze is internationally known, when she lost Patrick to Pancreatic Cancer, she could have mourned in private and no one would have blamed her.  She could have quietly gone on with her life without speaking about PC ever again.  Instead, she is a hero to many of us.  She keeps Patrick's voice alive in this battle, as I try to do for Ed's voice.  She fights beside us and for us in the public arena, because she can.  She is a super-star for this purple community - We Thank Her.

SHE IS A CHAMPION OF HOPE! 

President Obama Signs the Recalcitrant Cancer Research Act into Law

Pancreatic Cancer Action Network Praises President Obama for Signing the Recalcitrant Cancer Research Act into Law

AND HAPPY 2013 FOLKS.....  

This is why I will continue to volunteer and spread awareness.  So change will come.  I made a promise to Ed to not ignore this disease - to keep his voice alive - to make sure the next generation doesn't have to hear what we heard from the doctors. 

HOPE is on the horizon now.  We will change the future - We will fight together - We will ignore those folks who refuse to believe that we can make a difference. 

It is time to  KNOW IT.  FIGHT IT.  END IT.

The petty personal attacks will not stop me - the hate will not stop me - the negativity will not stop me - from carrying Ed's mission forward. 

The Recalcitrant Cancer Research Act, Formerly known as the Pancreatic Cancer Research & Education Act, Passes Congress - 19 Action News|Cleveland, OH|News, Weather, Sports

The Recalcitrant Cancer Research Act, Formerly known as the Pancreatic Cancer Research & Education Act, Passes Congress - 19 Action News|Cleveland, OH|News, Weather, Sports

Giant Shout Out to 19 Action News in Cleveland for publishing the Press Release from our National Headquarters.

When the local media steps up to help raise awareness it thrills me to no end.

You Go 19 Action News - Honest, Fair, Everywhere!  Ha.  Couldn't Resist.

Happy, Healthy New Year to you all. 

Peace - MK

The Recalcitrant Cancer Research Act will no doubt soon be Law.

http://www.pancan.org/email/corp/bill_passes_congress_dec2012_constituents.html

Best Holiday News Ever!  I am golden for Christmas with this news.  The only thing left to wish for is a cure.

Cleveland PurpleStride 2013

http://purplestride.kintera.org/faf/donorReg/donorPledge.asp?ievent=1051567&supid=351591224

HARD TO BELIEVE - BUT WE ARE ONLY 5 MONTHS AWAY FROM CLEVELAND'S

PurpleStride 2013.....

 

Saturday - June 01, 2013

Voinavich Park (behind Rock Hall)

Timed 5 K Run / 1.5 Mile Family Fun Walk

I love creating our Team Page and I get so excited whenever a new team member joins or a donation is made.  This is MY personal Christmas.  As the Holiday's have lost quite a bit of their magic for me, for now anyway, I truly look forward to our PurpleStride day.

This is the day that means so much to me.  This is a day that Ed loved near the end of his battle and journey on this planet.  This is a cause he made me promise to continue to support....   So - Come Join Ed's All Star Dream Team 2013 and let's help change the future of this Monster Disease!

It's Easy - It's Quick - And there is NO such thing as too small of a donation - Every Single Dollar helps and ad's up to make a difference.

This year is very different and will be a very quiet Holiday - so until Paige gets married and has babies of her own to brighten the holiday's with children's laughter - PurpleStride will be my personal holiday.

Wishing All of you a very Happy Holiday Season no matter what you celebrate.

Miley The Wonder Puppy

Well,  Teenagers do some pretty dumb things - their brains work different than adults.  I mean, we can all remember some of the really idiotic things we did back in the day, right.  So, one week ago my darling child decides to rescue a puppy - without my consent mind you.  I was adamant that we would not get another dog and that no dog was welcome in our house.  Within 24 hours of Miss Miley being in our house, you can imagine how fast my mind (and heart) were changed.

Against all common sense, and the reminder by my family that this is insane, I think I am going to keep this little girl.

I mean, common, look at that face!  She will be Miley the PanCAN Wonder Pup and you bet she will be sporting lots of Purple!

Wishing You all the Happiest of Holidays, regardless of what you Celebrate....  As my Sweet Ed and I used to say....... Happy Chrismahannakwanzavis.

Recalcitrant Cancer Research Act is Pushing Forward!

Update on the Bill:

Yesterday, December 4, 2012, the United States Senate passed the Defense Authorization Act, which includes the Recalcitrant Cancer Research Act of 2012 (crazy - yes - but that's politics for ya) It’s not law YET – we have a few more steps to go – but the finish line is clearly in sight!

Click here to learn more: http://www.pancan.org/section_get_involved/advocate/congressional_update.php

This is outstanding news to everyone who has ever been touched by Pancreatic Cancer! 

Our voices will only get stronger and Awareness will continue to grow.  The future of this disease MUST change - and I will continue to be a part of that change as much as possible.  You can help too!  Don't continue to ignore a disease that may touch your life! 

Visit www.pancan.org to see how you can get involved!

Cancer Bill May Hitch a Ride on Defense Authorization : Roll Call Policy

Cancer Bill May Hitch a Ride on Defense Authorization : Roll Call Policy

Hoping that our time is now! That is what I want for Christmas.

Big News from the Senate!

http://www.pancan.org/section_get_involved/advocate/congressional_update.php

CONGRESSIONAL UPDATE

November 29, 2012

Current Co-Sponsor Count for the Pancreatic Cancer Research & Education Act: in the U.S. House of Representatives (HR 733) Passed on September 19, 2012 Click HERE for detailed information in the U.S. Senate (S. 362) 59 (including our lead sponsor, Sen. Sheldon Whitehouse)  Click HERE for the full co-sponsor list to see if YOUR member has joined us!

THE RECALCITRANT CANCER RESEARCH ACT(FORMERLY KNOWN AS THE PANCREATIC CANCER RESEARCH & EDUCATION ACT) IS NOW OFFICIALLY PART OF THE DEFENSE AUTHORIZATION ACT!
As you may already know, on September 19, the U.S. House of Representatives unanimously passed the Recalcitrant Cancer Research Act, formerly known as the Pancreatic Cancer Research & Education Act (H.R. 733). Earlier today, the Senate approved the legislation to be added to theDefense Authorization Act. At this point, the Senate is expected to pass the Defense bill in the coming days.

Since the Recalcitrant Cancer Research Act was not in the House’s version of the Defense bill which was passed in May, delegates from the House and Senate will meet next week to iron out differences between the two bills. However, at this point, we do not have any reason to expect that there will be a problem getting this legislation included in the final Defense bill.

After the House and Senate agree on a compromise version of the Defense bill, the final bill will be sent to the President to sign.

Updates regarding the legislation will be sent out as it progresses through the process.


Appropriations Update
The "lame duck" session has officially started on November 13, and it will be a very busy couple of weeks as Congress focuses on finalizing the FY13 federal budget in order to avoid sequestration – which would mean automatic across-the-board cuts, which would be devastating to research funded by the National Institutes of Health (NIH).
By law, the $110 billion sequestration cuts will be split between defense and domestic programs. Of the domestic programs, an estimated $39 billion in cuts will be applied to “discretionary” programs, which include the NIH. With the remaining $16 billion in cuts coming from programs like Medicare. By Congressional Budget Office estimates, most programs will face a 7.8% budget cut per year. A cut like of this nature to the NIH budget will amount to over $2.4 billion in this fiscal year alone. Specifically, cancer research funding will receive a 8.2% cut over the next ten years.
While focusing on avoiding sequestration, Congress failed to agree on the federal budget before the start of the new fiscal year on October 1. Instead, a continuing resolution (CR) was passed on September 22 to allow the day to day operations of the federal government through March 2, 2013.
The CR essentially allows federal programs to continuing operating until Congress returns and decides how much money to allot to a wide range of federal activities, including cancer research. The CR, in this instance, will permit a small, 0.612 percent increase, to all federal programs. But while even a small increase in spending may be unusual in these austere budget times, it is important to note that funding for the National Cancer Institute will not even keep pace with the research inflation index.
“Some changes to current law are needed to prevent catastrophic, irreversible or detrimental changes to government programs or to ensure good government and program oversight,” the House Appropriations Committee said in its summary of the legislation.
Overall, the CR will fund the government at an annual rate of $1.047 trillion, the amount lawmakers agreed to last year as part of a deal to raise the government’s debt limit. That would be an $8 billion increase over current levels, according to the nonpartisan Congressional Budget Office.
It is important to note, however, that the new Congress that is sworn in next January will be charged with finalizing funding levels for federal spending through the remainder of the fiscal year. It is at this time that Congress will decide cancer research funding levels
The Pancreatic Cancer Action Network will be monitoring this issue very closely over the next several weeks.

Have Twitter? Follow us for the latest breaking advocacy news!

TempurPedic Hugs Back Campaign still going on!

If you have not already taken your

Rest Test

please plan to do it soon!!

$10 per validated rest test at a participating Tempur-Pedic retailer is donated

to Pancreatic Cancer Action Network. 

 

Find a retailer near you www.tempurpedichugsback.com 

THANK YOU Tempur-Pedic!!

 

Truly does not get any easier than this!

Lay down for 7 minutes.

Fill out a verification card.

Done.

We get $10 from Tempur-Pedic.

Campaign is going on through end of November!

 

So this Black Friday,

take a break in style & comfort, and do something good.

 

On that note - Happy Thanksgiving All.

 

 

 

 

Thank You WOIO Akron for sharing!

http://akron.woio.com/news/health/84976-local-volunteers-take-action-during-national-pancreatic-cancer-awareness-month

Our Press Release being shared in Akron Ohio Today...  Now That Is What I Am Talking About.  Awareness at it's finest.  Boo Ya Ohio.  It Is Time To KNOW IT.... FIGHT IT.... AND .... END IT.

Peace All.

Happy Thanksgiving Everyone

These are words I can relate to each night when I go to bed.
Happy Thanksgiving in Heaven my Sweet Edward James.
Your Favorite of all the Holidays.
I miss you always and am fighting for the cause just like you made me promise.
Till We Meet Again - I keep you safe in my heart.

Thanksgiving Weekend - 2007 / Atlanta, Georgia

Purple - Let's make it the new pink and stop this cancer from climbing the death toll ladder.

Purple - the new pink

Click the link above and see why we need to start spreading awareness for other very deadly cancers.  There are several of them and we need to spread the awareness love. 

The money is there - it just needs to be shared a little bit more.  And, really, isn't that what we were raised to believe by our parents. 

For you EJD, and so many more, we battle for you, this November, Pancreatic Cancer Awareness Month!

Pancreatic Cancer Magazine Outreach now On Line!

Pancreatic Cancer Action Network flagship magazine, Outreach, is now online and interactive with in-depth articles focusing on our advocacy efforts that support research, patient services, awareness and getting the Recalcitrant Cancer Research bill passed before the end of the year! New page turning feature makes reading online easy. 

Click below to check it out!
publication: Outreach Fall 2012

November is Nat'l Pancreatic Cancer Awareness Month! Watch our impact video! http://www.pancanvision.org/watch-the-video

November is Nat'l Pancreatic Cancer Awareness Month! Watch our impact video! http://www.pancanvision.org/watch-the-video: Watch this video to learn about the Vision of Progress and how you can help—then share it with your friends and family.

By clicking on the link above, you will help create hope.

Check out this great Fox Sports Ohio video - FOX Sports Girls - Pancreatic Cancer Action Network PSA

Watch This Great Video - Together We Can.... Know It. Fight It. End It.

Check out this great Fox Sports Ohio video - FOX Sports Girls - Pancreatic Cancer Action Network PSA

6% Survival Rate - 4th Leading Cause of Cancer Death in the U.S.

The Time for Change is Now.  Won't you support the Pancreatic Cancer Action Network.

Go to Pancan.org for more information and to see how you can help in your community.

Thank You Fox Sports & FSOHIO

Halloween 2006-2009

2006 - With "Dr. Love", aka "Eddie Luv", aka "The Doctor" - we had no choice that first year! Had to be the Dr. & Nurse!

Halloween with Ed and Friends
from 2006 - 2009.  In 2010 he was
too sick from his treatments - he 
was bummed (as was I) because
we loved getting dressed up
for Halloween!

This Year - I will be the Mayor of
PanCAN City!

2007 

 

 2008

 
 

2009

The Vision of Progress 2020

I took the Pledge - Will You...   With Your Support we can change the future for the next generation...  Don't let your family, friends and loved ones be at risk for a 6% survival rate.  With your help in raising awareness - the future CAN and WILL be changed.

Senate should pass cancer bill NOW - Washington Times

Julie is a Rock Star C.E.O.  Maybe she should be a Senator!  It's time to Get'er Done!  Click on the link to see why....

Senate should pass cancer bill now - Washington Times

Beautiful Poem...

Borrowed from someone I admire very much. Thank you Gina for helping me even though what you are dealing with I can not imagine.  For Gino and Ed.... Forever in our hearts and always on our minds.

To Honor You

By Connie Kiefer Boyd

...To honor you, I get up everyday and take a breath.

and start another day without you in it.

To honor you, I laugh and love with those who knew your smile and

the way your eyes twinkled with mischief and secret knowledge.

To honor you, I take the time to appreciate everyone I love.

I know now there is no guarantee of days or hours spent in their

presence.

To honor you, I listen to music you would have liked, and sing at

the top of my lungs ,with the windows rolled down.

To honor you, I take chances, say what I feel, hold nothing back,

risk making a fool of myself, dance every dance.

You were my light, my heart, my gift of love, from the highest

source.

So everyday, I vow to make a difference, share a smile, live,

laugh, and love.

Now I live for us both, so all I do, I do to honor you.