Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Wednesday, October 13, 2010

One More Week In Limbo

Well, what a crazy week...

We had our mini 5 day vacation in Hilton Head to celebrate my baby cousins wedding, Lisa and Mark what a fabulous wedding you had! The weather was incredible, 85 & sunny! My sunburn can attest to the weather, I turned into a lobster. The boys golfed on Friday - Ed loved every minute of it, even though he only golfs about once every two years! And, his foursome won! He loved being with Mark's Dad & Brother-In-Law out on the course, really got to know all the guys well! Came back in quite the good mood. He fell in love with Aaron (sp?), one of Lisa's friends husbands... Immediate Bro-friends! He enjoyed Dallas (as we all do)... We got to know Emily & Sam, Dan's friends, we loved hearing everyone say "The Kelly's", I had Josh the personal musician on the balcony above mine to keep me entertained, breakfast was always just a fantastic gathering of friends & family... it was truly a perfect weekend. Ed and I both hit the exhaustion wall on Sunday evening (the Browns loss didn't help our spirits) and are still continuing to recover!

The wedding was on the beach and was just beautiful. The food was fabulous. The friends and family together just couldn't be beat.

It was a great distraction for what we are waiting for next Thursday (10/21)... triple CT scan, blood work and meeting with the Oncologist & Surgeon right after all results are back. We are scared. For only the 2nd or 3rd time since this nightmare began, Ed is not feeling very positive right now. He thinks for some reason we are going to get bad news... I pray he is wrong and that we are granted a miracle. If surgery is an option, I'm sure it will be done very, very quickly. If Ed's cancer has metastatsized or the tumor has not shrunk away from his major arteries and surgery is not an option, I don't know what the course of action will be.

Remember, November is pancreatic cancer awareness month... I know everyone loves to save the tata's, but pancreatic cancer needs some major attention! There is still only a 6% survival rate, only 2% of the National Cancer Institutes money goes to pancreatic cancer research, pancreatic cancer has not had any improvements in survivability in over 40 years - 40 years - that is insane people, pancreatic cancer is the #4 cancer killer in this country.... Nuff said! Work needs to be done. So check out and see what you can do to help!

Love to all!!!