As I sat watching C-Span last night (Wed. 9/19/2012) I couldn't believe that I was watching the House unanimously pass a Bill that I, along with thousands of other folks that volunteer for The Pancreatic Cancer Action Network, have worked so hard to get passed. For Our incredible staff in Washington and California alike, what an amazing accomplishment. And in some very small way, I helped - because Ed asked me too. I don't know if I'll ever make the trip back to D.C. for Advocacy Day, it was hard, really hard. But who knows, this feeling of accomplishment is overwhelming and all I did was tell our story - his story.
Now, as soon as possibly TODAY, the Senate side will vote.... if we can get the Affirmative on the Senate side it will head to the Presidents Desk......... This is what Ed wanted to see.... this is what he wanted to do - ADVOCATE. He never got the chance to make it to Washington, D.C., but I did. I brought his fight to the Hill, it was by far the most difficult thing I have ever done. Reliving his battle was painful to say the least... but it had to be done. The future has to change for people diagnosed with these "recalcitrant" cancers... So they changed the name of the bill, Who Gives A Gobidy-Goo... Call it the "we-had-to-think-of-the-hardest-word-to-say" Cancer Research Act of 2012 (in other words, the Recalcitrant Cancer Research Act of 2012) and just get the dang thing passed.
I cried a lot watching this happen last night - It was more emotional than I could have ever imagined - It's C-Span for gosh-sakes - C-Span......... Rep. Ann Eshoo rocked the microphone like a star. It was a brilliant thing to behold. If I would have missed it live, I would have been crushed. I also DVR'd it. Think anyone would be interested in coming over to my house for a "House Passes a Bill on C-Span" Party - - - - *** crickets *** Oh, well ... Guess I'll have to enjoy that one on the couch alone.
So - Here's to the Senate doing the right thing and passing S.362, The Recalcitrant Cancer Research Act of 2012! And here's to the guy that lives in that big ol' white house signing it into Law.
Oh, EJD, this, this was your highest goal during your volunteer days with this group - we did it!
Hopefully, the change will come now and the next generation will not have to hear.... "Sorry, your terminal, there is no hope. Go get your things in order and say good-bye."