Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Wednesday, June 26, 2013

Pancreatic Cancer remains one of the Deadliest Cancers - The Post Newspapers : Opinion

Shout out to The Post for publishing our LTE....  just found out today!  Happy Flippin' 50th BD to me!  I celebrate this week for myself and for my Ed who didn't get a chance to make this milestone BD.  I wear this number as a badge of honor - getting older is a privilege that too many Pancreatic Cancer victims do not get a chance to experience!  So Rock On CLE style folks!

Pancreatic cancer remains one of the deadliest cancers - The Post Newspapers : Opinion

The 7th Annual Pancreatic Cancer Advocacy Day was a HUGE success.....  It is certainly not my cup of tea - doing the political side of this battle - but I was honored as the State Leader for Ohio and I took this opportunity and made the absolute most of it.  Congrat's to the Pancreatic Cancer Action Network for organizing another GREAT year on the Hill.  600+ Strong to make our voices heard and to let the Gov't know - We Are Not Going Away anytime soon. 

Tuesday, June 4, 2013

PurpleStride Cleveland 2013 - A Great Day on a Great Lake

Well, to say PurpleStride Cleveland on June 1st was a huge success would be an understatement.  The new venue was fabulous, the weather held out, our emcee - Joe Pagonakis was his usual, incredible self and our Champion of Hope, Cleveland Browns own John Greco was as gracious as he is tall.  His Fiance' Jodi was also so warm and supportive.  It was truly a Great Day on a Great Lake and my heart was filled with joy! 

Photos-Glenn at The Purple Stride 5k Event « Q104 Cleveland

I am especially proud of Ed's All Star Dream Team 2013 - We rocked our fundraising and were the #3 Team - for me personally - hitting the goal of the #3 individual fund raiser was an extremely proud moment.  The weather held out for us and I got to enjoy an afternoon of love and friendship when it was over.  Am I burned out - you bet.  But I need to re-energize as I get ready to head to Capital Hill for our Advocacy Days to ensure congress does NOT reduce health care funding due to sequestration.

We also have our incredible Purple at Progressive night coming up on Sat. July 13th against Kansas City....  That is going to be a blast as well.  If you have never paraded the bases at the Prog - it's too much fun!  Going down the tunnel and seeing the ball field from a different perspective is very cool.

You know you want to join us - it's pretty easy to have a great summer night while supporting this very worthy cause - click here:

So - although I don't blog nearly as much as I should - my commitment to keeping Ed's mission alive and moving forward is still part of my daily life.  I don't see that changing anytime soon!

Much Love to you all (if anyone is still even reading) ........  MK