Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Wednesday, July 25, 2012

14 Famous Faces of Pancreatic Cancer, Still Not Enough.

When - When - When will this cancer be taken seriously - How many annual deaths make it worth looking into.  When will the Government and The Media give us the same respect they give the Pink.  I am furious about this today - FURIOUS - I know I am angry because we are sitting on Ed's 1 year anniversary - I should never, never have had to loose him to this disease - but because the powers that be do not take it seriously - he is gone.  Lost forever to a disease that could be fought if those who have been granted the power wanted it to be fought.

Who has to die - WHO?  Steve Jobs obviously wasn't enough to get it the attention it needs - Patrick Swayze obviously wasn't enough - a renowned heart physician and another great surgeon here in the CLE is not enough - Dr. Randy Pausch who's lecture on dying is world renowned.... not enough...  A Pink Floyd band member, a Deep Purple band member, a local and beloved sports announcer, a world renowned Tenor - WHO?  A MLB baseball coach, several famous actors.........   Who does it have to be????  I mean, surely, none of the powers that be give a crap about an extraordinary middle-age man from Cleveland - SO WHO I ask?

When?   W H E N ????   Research - WE need Research - we need it NOW.  Or the next generation will be typing these same words and replacing it with their idols, parents, siblings and children's names .....

RIP to them all.........   But for me personally, to the man of my dreams, because that is the only place he exists now.  ILYB....... me xo

Monday, July 23, 2012

Statement by the President on the Passing of Sally Ride | The White House

Statement by the President on the Passing of Sally Ride | The White House

What is it going to take to get our bill passed. Who is going to have to die to make the government step up and pass the bill. The Pancreatic Cancer Research and Education Act needs to get passed this year. Go to and see how you can contact your elected officials and change the future of this monster killer.

Monday, July 16, 2012


Sunday - August 26, 2012 at 1:05 p.m.
Go To: - and click on the Event for Details
and to purchase your tickets!

Join us as we cheer on the Cleveland Indians as they take on the New York Yankees while supporting the fight against Pancreatic Cancer! A portion of each ticket sale will go to the Pancreatic Cancer Action Network.

To purchase tickets:
Be sur
e to enter the special offer code: pancan
$22 Each 

If you are a survivor who will be attending the game please email Erin Corwin at

Interested in participating in an exciting pre-game activity? We have been given the opportunity to parade around the bases to raise even more awareness and support our local survivors and caregivers before the game! For more information please contact Erin Corwin, Affiliate Coordinator, at

Friday, July 6, 2012

San Diego Padres' Come Through in a Big Way!

It is unfortunate that we have to face the loss of yet another warrior to Pancreatic Cancer, but it is with much appreciation that I acknowledge the San Diego Padres for honoring one of their own.  Their very generous contribution and willingness to raise awareness in our fight, and honoring an awesome ball player, would make Ed really happy.  I mean, it's a ball player for crying out loud!

Tuesday, July 3, 2012

Patrick Swayze's widow pushes for pancreatic cancer research

Patrick Swayze's widow pushes for pancreatic cancer research

Where We Stand as of 7.2.12 with Gov't Support

Here is the information that I copied & pasted from our Advocacy page.  You can access this page yourself and send an already created letter to your Senators and/or Congressmen to help change the future of this disease:

Become an Advocate
Advocacy Action Center
Pass the Pancreatic Cancer Research & Education Act this Year!

The Pancreatic Cancer Research & Education Act (S. 362/H.R. 733) has achieved an extraordinary level of support. No health-related bill has more bi-partisan co-sponsors in the 112th Congress. Yet, the committees of jurisdiction over this bill have not taken action on the bill despite the support of a majority of both committees’ members.

We are grateful that the authors of S. 362 (Senator Whitehouse) and H.R. 733 (Reps. Eshoo and Lance) have drafted a “Dear Colleague” letter urging the leaders of the Senate HELP and House Energy & Commerce Committees to mark up these bills right away so that the full Senate and House can vote on them.

We need as many signatures on the Senate and House Dear Colleague letters as possible so that the committees of jurisdiction get S. 362/H.R. 733 moving to a vote and to the president’s desk by the end of the year! Below is a list of all the senators and representatives (listed by state) who have already signed onto the letters. Please click on the buttons below to send an email to your members of Congress and either thank them for signing onto the letter or request that they do so no later than Friday, July 13.

It is time Congress acts on critical pancreatic cancer legislation!
As of July 2, 2012
U.S. Senate Letter Signers
Sheldon Whitehouse (Rhode Island)
Barbara Boxer (California)
Joseph Lieberman (Connecticut)
Richard Blumenthal (Connecticut)
Richard Lugar (Indiana)
Chuck Grassley (Iowa)
Jerry Moran (Kansas)
Susan Collins (Maine)
Scott Brown (Massachusetts)
John Kerry (Massachusetts)
Thad Cochran (Mississippi)
Roger Wicker (Mississippi)
Roy Blunt (Missouri)
Ben Nelson (Nebraska)
Kirsten Gillibrand (New York)
Chuck Schumer (New York)
Kent Conrad (North Dakota)
Sherrod Brown (Ohio)
Jack Reed (Rhode Island)
Tim Johnson (South Dakota)
Bernard Sanders (Vermont)
Patrick Leahy (Vermont)
U.S. House Letter Signers
Anna Eshoo (CA-14)
Leonard Lance (NJ-7)
Jo Bonner (AL-1)
Mike Ross (AR-4)
Ed Pastor (AZ-4)
Barbara Lee (CA-9)
Jackie Speier (CA-12)
Zoe Lofgren (CA-16)
Sam Farr (CA-17)
Linda Sanchez (CA-39)
Joe Baca (CA-43)
Ken Calvert (CA-44)
Brian Bilbray (CA-50)
Diana DeGette (CO-1)
Bill Young (FL-10)
Dennis Ross (FL-12)
Vern Buchanan (FL-13)
Bill Posey (FL-15)
Ileana Ros-Lehtinen (FL-18)
John Lewis (GA-5)
Bruce Braley (IA-1)
Dave Loebsack (IA-2)
Tom Latham (IA-4)
Danny Davis (IL-7)
Jan Schakowsky (IL-9)
John Yarmuth (KY-3)
Jim McGovern (MA-3)
Dutch Ruppersberger (MD-2)
Roscoe Bartlett (MD-6)
Gary Peters (MI-9)
Sander Levin (MI-12)
Erik Paulsen (MN-3)
Todd Akin (MO-2)

Alan Nunnelee (MS-1)
Bennie Thompson (MS-2)
GK Butterfield (NC-1)
Walter Jones (NC-3)
Frank LoBiondo (NJ-2)
Rush Holt (NJ-12)
Shelley Berkley (NV-1)
Joe Heck (NV-3)
Peter King (NY-3)
Bob Turner (NY-9)
Carolyn Maloney (NY-14)
Charles Rangel (NY-15)
Elliot Engel (NY-17)
Paul Tonko (NY-21)
Maurice Hinchey (NY-22)
Bill Owens (NY-23)
Ann Marie Buerkle (NY-25)
Chaka Fattah (PA-2)
Jason Altmire (PA-4)
Pat Meehan (PA-7)
Tom Marino (PA-10)
Allyson Schwartz (PA-13)
Mike Doyle (PA-14)
Steve Cohen (TN-9)
Bill Flores (TX-17)
Gene Green (TX-29)
Jim Matheson (UT-2)
Frank Wolf (VA-10)
Rick Larsen (WA-2)
Dave Reichert (WA-8)
David McKinley (WV-1)
Shelley Moore Capito (WV-2)