Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Tuesday, May 10, 2011

No More Chemo for now

Well, Folks, I hate to write this, but the Xeloda didn't work for Ed.  He was supposed to take the medication for 14 days, he lasted only 5.  It made him very sick and he lost about 10 lbs. in those 5 days.  This was most probably the last chemo he will try and my heart is completely broken for him and the rest of us who love him so much.

He also has a "sizable" blood clot in his right calf now as well as the very large one in his left leg.  He remains in a great deal of pain on any given day and it is just unbelievable that our medical community has not figured this stuff out yet.  But if they figure it out, the big Pharmaceutical Co's & the Gov't. will lose too much money, because after all, it really is all about the money, no?!  Anyway, I'm a bit bitter this week, can you tell.  Ed had his blood thinner med changed to Arixtra in the hopes of helping with the clots.  I guess all that is left to do is pray, which quite frankly, I'm having personal issues with.

Sandy H.'s hot dog sale on Sat. was quite the success.  Sandy and the kids raised $513 for Ed's All Star Dream Team for PurpleStride Cleveland!  We are touched by their hard work and dedication to this important cause.  Go Team Ed!

We are supposed to depart on our cruise this Sunday, but depending on what the Oncologist says on Thursday, we may still cancel as we don't know if he will get a green light to fly?!  I did finally get Ed to start wearing the circulation stockings, but um, it's a bit late now.  I did nag him relentlessly about wearing them for the past several months, but, well, he's a man.  Hopefully they will help a little with reducing the swelling and cutting some of the pain in his calf.

And, I want to shout out to our PurpleStride team....  We are 29 members strong right now and still growing!  We may have the biggest team ever.  So thank you everyone for your support, it means a great deal to Ed and myself.

One last thing, we went back to the B-Spot in Strongsville and I DID get the Vanilla Apple-Pie Bacon Shake, Chef Symon you are a genius.  Ed wouldn't taste the shake, but he did have the fabulous Root Beer Float...  I had, I think, the Lola Burger which has the Egg on it - O M G, heaven on a bun baby!  The chips were awesome, but I don't do strong cheeses, so the dip wasn't for me.  Way to much food for the two of us!  But, it was a nice way to end what was otherwise a sad week.  I highly recommend that everyone go in on a Friday afternoon about 2:30 p.m., you can waltz right in, get a table, enjoy some awesome service and have the best burger on the West Side!

Take Care Everyone....  Hopefully the weather will continue on this new pattern of sunny days for a while!

Peace, Ed and MK