Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Tuesday, January 28, 2014

Non-Profit Times Selfie Contest ... And The Winner Is.... Not Me!

Here is the copy of the announcement!  Although I didn't "win" - it was such fun and raised awareness!  And truly, that is what the goal always is.  To get the word out that this outstanding organization exists and is here to help anyone through the battle that is Pancreatic Cancer.  #2 - Works for me, hell, even if I came in 5th I'd be pleased, and because it is award season, I say.... It was an honor just being nominated!  And that is no exageration.

The votes have been counted (and recounted) and we are now ready to announce the winner of the first NPT Selfie Contest. The winner, with 30.76 percent of the vote, is…
Kimberly Johnson, of the Cystic Fibrosis Foundation!
Jillian Goodwin January 1, 2014
Kimberly’s photo of a Cystic Fibrosis patient clearly resonated with out audience and she will be the winner of a $100 AmEx Gift Card. Mary Kaye Mackulin of the Pancreatic Cancer Action Network came in second place with 26.71 percent of the vote. Though there can only be one grand prize winner, all five of our finalists will be featured in an article in the March 1 issue of The NonProfit Times.
The full results can be viewed below:
Pancreatic Cancer Action Network
Everybody Eats
Education Connection
Heifer International
Cystic Fibrosis Foundaiton
We at The NonProfit Times would like to thank everyone who participated in the NPT Selfie Contest this year. It was a lot of fun and we hope that we can revisit it again in the near future.

Thursday, January 23, 2014

#NPT-Selfie Finalist - How Flippin' Cool is this!

Well - It's been a long time since I've posted on this blog!  Life is crazy busy and although I remain committed to the battle that is Pancreatic Cancer, the desire to write has not been very strong lately.  

I am not the kind of gal who "wins" much - the only "luck" I have is what I earn through hard work and dedication.  If I go to a casino, I might as well just wad up my money and toss it in a trash can, cause the odds of me winning anything by gambling are about non-existent.  I did, however, throw my picture into a contest to raise awareness for the Pancreatic Cancer Action Network - and low and behold - made the top 5!  And, it's not even some amazing picture - just a cool pic of me in Washington, D.C. in June 2013 participating in Advocacy Days & PurpleStride DC!

Here is the link to the site:

Voting closes tomorrow (January 24, 2014) so I know that I won't get a butt-load of extra votes because I posted on this blog - but rather - just wanted to share this cool thing that happened.  It just goes to show ya, that with a little persistence, raising awareness can come in the strangest ways.

I continue to miss Ed daily - I don't cry too often because I don't have the every day sadness of watching him suffer.  I have random outbursts, however, at the strangest times.  Usually in the car driving because of a song that pops up on the radio.  He will always be a part of me and I cherish it deeply. 

And Don't Forget.............    PurpleStride Cleveland is right around the corner and we sure could use some great team members - and volunteers!  If you register as a volunteer, It's FREE!  And, you still have a ton of fun - believe me.  So mark Saturday, 6/21/2014 on your calendar and join us at Voinovich Park for a Great Day on a Great Lake!  This year marks our 13th consecutive PurpleStride and we'd love to see it be the BEST ever!  Just click here to join Ed's Team: