Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Thursday, January 23, 2014

#NPT-Selfie Finalist - How Flippin' Cool is this!

Well - It's been a long time since I've posted on this blog!  Life is crazy busy and although I remain committed to the battle that is Pancreatic Cancer, the desire to write has not been very strong lately.  

I am not the kind of gal who "wins" much - the only "luck" I have is what I earn through hard work and dedication.  If I go to a casino, I might as well just wad up my money and toss it in a trash can, cause the odds of me winning anything by gambling are about non-existent.  I did, however, throw my picture into a contest to raise awareness for the Pancreatic Cancer Action Network - and low and behold - made the top 5!  And, it's not even some amazing picture - just a cool pic of me in Washington, D.C. in June 2013 participating in Advocacy Days & PurpleStride DC!

Here is the link to the site:

Voting closes tomorrow (January 24, 2014) so I know that I won't get a butt-load of extra votes because I posted on this blog - but rather - just wanted to share this cool thing that happened.  It just goes to show ya, that with a little persistence, raising awareness can come in the strangest ways.

I continue to miss Ed daily - I don't cry too often because I don't have the every day sadness of watching him suffer.  I have random outbursts, however, at the strangest times.  Usually in the car driving because of a song that pops up on the radio.  He will always be a part of me and I cherish it deeply. 

And Don't Forget.............    PurpleStride Cleveland is right around the corner and we sure could use some great team members - and volunteers!  If you register as a volunteer, It's FREE!  And, you still have a ton of fun - believe me.  So mark Saturday, 6/21/2014 on your calendar and join us at Voinovich Park for a Great Day on a Great Lake!  This year marks our 13th consecutive PurpleStride and we'd love to see it be the BEST ever!  Just click here to join Ed's Team:


  1. Congratulations. So we can vote for you?

  2. Voting is over now, but I will let Tou know how we did come Monday. 1.27.14


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