Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Wednesday, August 13, 2014

Community Outreach Leadership Training - aka #COLT2014

The Pancreatic Cancer Action Network presents
COLT 2014 in Los Angeles, California!

So, it was COLT time again 2014 ... Exciting, stressful, fun, emotional, draining ... you name it, we experience it in 2.5 days while battling jet lag from flying to California. But, hey, when you get a chance to spend time with your purple family from around the country, you jump at it, however exhausting it proves to be!

Thus, the Cleveland, Ohio Affiliate Core Roles of the Pancreatic Cancer Action Network spent this past weekend in Los Angeles with our @pancan (follow them on twitter) family. We had intense training, met and spoke with researchers, had a few cocktails, shared tears and, of course, laughter. (Learn more at

The end of our weekend is highlighted with a dinner and awards ceremony followed by drinks & dancing! I was especially excited for this year as I was nominated as Media Representative for 2014. May not seem like a big deal to some, but to me it meant a huge deal. Why, well, that Ed continues to be honored, that we still fight for all who have been diagnosed and are battling, for those lost we keep your voice alive, and that by 2020 we will double the survival rate! No more 6% - No More!

I am honored and proud to say, I was indeed named the 2014 Pancreatic Cancer Action Network Media Representative of the year. I am humbled and share this with the entire Cleveland Affiliate who work tirelessly for NE Ohio to ensure the future of this disease will be changed! Together we will move forward, grow our PurpleStride to match those "big markets", continue to have our PurpleLight National Vigil of Hope to remember and honor our purple warriors and together, we will #WageHope!

Here is a sneak peek at our weekend - please take a few minutes to see how #Cleveland represented our city proud in Los Angeles by clicking this link - enjoy:

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