Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Saturday, August 13, 2011

In Hospice Now

Well, It looks like Alice Cooper was making Ed hold strong there this last week.  After the show & the meet and greet - Ed slept, Ed slept until Wed. night, almost 24 hrs.  Then he proceeded to have a panic attack in the middle of the night / early Thursday a.m.   We took him to hospice on Thursday, early afternoon, and he is there resting now.  I am only home for a quick shower & brief updates to messages left on FB, so am not going into detail as of now.  Just know this, he is a much loved man with no less than about 25 visitors every day since Thursday afternoon.  I am so tired, but I don't like being away from him for more than a couple hours...   He is my heart and I just want him to be at peace...   There is a chance he can come home on Monday, but will need round the clock care just to ensure he doesn't fall.  I am so sad I cannot take FMLA and take care of him, but I will do the best I can to juggle it all - isn't that anybody would do really?!  So, gotta blow my hair dry & throw on some make up.  Love to you all who I know are praying for him and his loved ones....   Peace, and as always, good health - MK & Ed.........   xoxo

1 comment:

  1. Dear MK,
    I have been reading this blog every day for months. I am not certain how I came upon it. Perhaps it was an online news story. My husband is in a nursing home, due to complications related to lymphoma/chemotherapy. I only said that to let you know I undertstand about dealing with a life threatening, non curable disease. They don't think his lymphoma can be cured. He's in remission, but they expect it to rear it's ugly head again.
    I just want you to know that I have prayed every single day for Ed. I pray for pain free for him. The story of you and Ed is simply heart breaking. My heart breaks for you, but the love the two of you have for each is something so very special. I believe it is something that not many people achieve in their lifetime. I pray that God will bless all of you with strength and courage to be there for this very special man. I am praying for peace for him.


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