Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Sunday, July 25, 2010

New Week Ahead of Us

Sunday morning... I want this day to be near the end. I know I should not wish time away, but Ed comes home to me tonight for this week. We have another very special weekend coming up on the 30/31st, with Dar's family. Monsoon Lagoon on Sat., one of my favorite things to do when we are in Marblehead. If anyone has nothing to do on Sat., come join us at there swim up pool bar! It's only $20 for the day and we always have a blast! Pools, Water Slides, Go Carts, Putt-Putt, Bumper Boats... the kids always have so much fun and it's only 1 hr. 15 min's from home, ... check it out - the more the merrier! It's a really small park, so no matter where you are sitting, you can actually see your kids when they are in the water! Paige is Nat's personal life guard, so that is awesome. Oh, and Brad Paisely/Darius Rucker - O M G, what an incredible show. Ed and I were like two teen-agers all night long, soooo much fun. Check out my pic's on Facebook if you get a chance.

Tomorrow is CT scan day - I'm so trying not to get my hopes up, but it's hard not to. I realize the odd's are not in our favor, but I just cannot go down that road yet that surgery won't be possible. Chemo on Thursday as well as a sit-down with the Oncologist. I will let everyone know what the resutls are as soon as we know something.

I was thinking this morning how much I hate to date... There is a reason I was single for all of my late 20's/30's and the first 3 years of my 40's... Dating sucks. I hate getting to know someone, then you find out that it's all smoke & mirrors and the person is not who you thought they were. Turns out, that is true, Ed was not what he appeared. He had a reputation, I knew everyone loved him dearly, who needs that kind of pressure. I thought he was all cool and slick, I had gotten to know him better between our 20th & 25th reunions, but still - too cool for me. I mean, no one could be THAT nice or THAT good, right?! Wrong, not only was his reputation right on, there was so much more to him. He's honestly not that cool... It's more like this... He is sweet, kind, caring, generous, an outstanding father, a good listner (lord knows I need one of those), funny as hell, goofy beyond belief sometimes which is the most adorable thing ever, compasionate, the best friend anyone could wish for, good-looking beyond belief, a fantastic kisser, respectful, honest, and the one thing I needed most of all.... Trust Worthy. I never thought I would trust anyone again, and I do with my entire heart and soul. He will forever be the greatest gift in my life, 2nd only to my daughter. So, pray or hope or do what you do so the man upstairs knows that we need him hear, not only for me, but for his girls and Paige. And yes, Ed and Paige would tell me to stop being such a drama queen, but hey, it is what it is..... So, love those you have every day with whatever you have inside of you, because a gift as precious as true love is a rare and wonderful thing. So, being seriously single for 17 years was worth waiting for that right one, I don't regret a day of being alone all that time. If God knew I had to wait, then I'm praying he knows to leave him with me/us.

Don't forget -; there is a new post on the site about sending more letters to the house/congress for research. I keep sending my letters!

Much Love - MK

1 comment:

  1. Let me just say that your love for Ed lifts my heart more than you oould ever know! I'm thrilled that you two found each other and pray daily that God would COMPLETELY remove that tumor from Ed. I believe that He can, and pray that He will. My love to both of you.

    Monsoon Lagoon sounds like a blast and something that my little fishy (aka: Joshua) would LOVE!! I definitely need more information on this and am seriously thinking of joining you guys. Do you think Paige would adopt Joshua along with Nat? He's a good swimmer but it would be great for him to hang with some friends! When are you going up? I'll call you SOON, as I don't work on Fridays and hubby is gone until Saturday night!!! I LOVE YOU!!!!!
    Love ya~


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