Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011

Wednesday, December 1, 2010

December 1, How is that even possible.

How is it possible that it is even December? How is it that almost 9 months ago we started on this horrific journey that led to the creation of this blog? How is it that someone like Ed could be sick when there are so many sicko's in the world who are living with no illness -or- only self-induced illness? How is that you finally get the gift of true love and then it can be taken away in a blink of an eye? How is it that I'm supposed to trust the higher power when He has done this to one of His most incredible creations? How is it that people can treat people like crap and still come up smelling like roses and the truth will forever be hidden? How is it that I can ramble on like this? O.K., I'm done with that.

I just want to thank the Powell family of Berea, Ohio. They are a St. Mary's family whose son, Andrew, and Paige were in Children's Letters to God together last year. They so graciously gifted Ed and myself club seats for the Jan. 2, 2011 Browns -v- Steelers game - with parking. How is it that just when you loose faith in people, people restore it in leaps and bounds - beyond imagination. So to Stephanie & Chris - our most sincere thanks!

Thanksgiving weekend was just a big old eating, drinking, family loving 4 days! With Dan, Lisa and Mark (and Jasmine) all home, it was wonderful to have everyone together for our special dinner. It was fantastic that Ed was able to have this Thanksgiving with us. We have never shared a Thanksgiving day together in our 5 years... for that I'm truly thankful. Plus THE Ohio State beat that nasty team from up north! Always makes for a great Saturday. Everybody sing, We don't give a damn about the whole state of Michigan, the whole state of Michigan, the whole state of Michigan.... 'cause we're from O-HIO ;)~

Ed will be completing his 10 days of radiation either on Dec. 7th or 8th. On 12/7 he will be having a medi-port installed (sounds like a car part). This will be used for his at home chemo hook-up. Can you say yucky. He will start his new chemo on 12/13; this is going to be a rough one. I guess it's supposed to be about 6 hours in the chair, then they hook up chemo to his medi-port and he continues at home with it for the next 48 hours - so about a 3 day process. He will get this every other week, or every 3rd week depending on how his body handles it. He will not be working and will be on short-term disability. He WILL go out of his mind... He LOVES to work (I know, he's insane). On the bright side, he has turned my very lovely girl living room into a man-cave of sorts; he bought me, yes, me, a 46" plasma flat-screen - just what every girl wants for Christmas (cough, cough *diamonds* cough, cough)... But, it is pretty cool. He will be watching ESPN a lot. I figure, if he is stuck on the couch, at least he will have a giant TV in my tiny living room to keep him company. I am going to get him a juicer, I am bound and determined to get some nutrients into that boy! So see, he gets me a TV I get him a kitchen appliance... turn around is fair play - no?!

Well, I will keep you all posted... Still have not heard anything from the Dream Foundation, but still keeping that wish alive for the Super Bowl in Dallas! Hopefully we will hear something next week.

Wishing each and everyone of you a very Merry Christmas and more importantly, a HEALTHY and Happy New Year.

Love Mary Kaye, Ed, Paige, Taylor & Kalista

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