Always Fighting for the Love of My Life

Edward J. Demyan; Pancreatic Cancer Victim; Supported and written by MaryKaye Mackulin, who loved him.
RIP my sweet man ... 1963 - 2011





Thursday, September 23, 2010

One Month to Wait

Went to the Oncologist today.... Tomorrow is the last day (day #33) of radiation and then Ed's body will get the break it so richly deserves. One month with No chemo (13 rounds completed) and No radiation - just let the medicine that is in his body work it's magic for 4 long weeks. On October 21, 2010 Ed will have a CT Scan, Blood Work and then meet with Drs. Meropol (Oncologist) and Hardacre (Surgeon) to see what our next steps will be. We pray that surgery is next on our plate. Although the surgery is scary and not without great risk, it is truly the only hope for any longevity of life. I am supposed to be supporting him but I'm an emotional basket-case. Thank goodness Ed is the supportive, positive, strong man that he is. He makes me laugh even when I do not want to, he makes me cry because he CAN do that. I cannot imagine living without that gift in my life.

I pray that with Dorothy in heaven, she is talking God's ear off and convincing him to let Ed stay with us for quite a while. He has a pretty big fan club up there and I ask them each day to help us.

He was incredibly strong over the last 6 days, he is tired, but resting a little better these last two evenings... I think with his Mom's passing, there is a bit of peace as she suffered greatly and it was time. Frannie was incredibly strong as well. I will need Frannie more than ever in the coming months.

Once again - thank you to everyone for your support, prayers and positive energey. Ed's band will be playing out on Friday, Oct. 22, 2010 at the Euclid Tavern and our sincerest hope is that this will be a night to celebrate. In the meantime, he has his children, his step-daughter, his sister, his band, his friends, his boat and an incredibly devoted fiance' to keep him busy.

Oh yeah, and there is this little wedding we get to go to in Hilton Head soon that should be a ton of fun.... Four days on the beach cann't hurt.

Peace! xoxo MK & Ed xoxo

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